Can we deviate from the provided consent language?
- Sara Latour (Unlicensed)
- Emily Martens
- Bianca Lasalandra
The consent language specific to Brain-CODE is a critical component of the study consent forms and was drafted to provide transparency to study participants. It is imperative that we communicate how the information provided by study participants will be used to further our understanding of brain disease.
With this goal in mind, the consent language was developed in consultation with Integrated Discovery Program investigators, legal, privacy and health policy experts and the Office of the Information and Privacy Commissioner of Ontario. To ensure consistency across all research sites, and to maximize the output of our investigators with the data collected and stored in Brain-CODE, it is important that the language remains as is provided and embedded within the study consent form.